Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease

Ulf Erland Johansson; Agneta Grimby

doi:doi:10.11648/j.pbs.20140305.15

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Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease

Ulf Erland Johansson, Agneta Grimby

Published in Psychology and Behavioral Sciences (Volume 3, Issue 5)

Received: 26 September 2014 Accepted: 11 October 2014 Published: 10 November 2014

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Abstract

Several illnesses cause suffering and pre-death grief among close relatives, as in cancer and dementia. This might be the case also at Parkinson’s Disease (PD). We aimed at getting grief self-reports of relatives of PD patients using the same instrument (AGS) as in former grief studies to see similarities and differences. Anticipatory Grief Scale (AGS) and questions about background variables were sent to PD caregiver support groups in Sweden to be handed out to the members at their meetings. Close relatives of persons with Parkinson’s disease (PD) reported feelings and reactions on the AGS, and the results were compared with those from relatives of dementia patients in a former study also using the AGS. Self-estimations about the duration of illness, the condition at the time for questioning, and the perceived quality of care of the relative with PD were also made. The study showed an overall stressful situation including feelings of missing and longing, inability to accept the terminal fact, preoccupation with the ill, tearfulness, sleeping problems, anger, loneliness, and a need to talk. The PD and dementia groups appeared to show much more anticipatory grief similarities than dissimilarities. The duration of the disease did not influence the grief reactions, which, however, was shown for perceived quality of care as regards irritability and preoccupation thinking of the ill relative. Also the respondents’ perception of a bad condition of their relatives showed increased reports on loneliness, a need to talk about the illness, personal dysfunction, and not planning ahead.

Published in	Psychology and Behavioral Sciences (Volume 3, Issue 5)
DOI	10.11648/j.pbs.20140305.15
Page(s)	179-184
Creative Commons	This is an Open Access article, distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution and reproduction in any medium or format, provided the original work is properly cited.
Copyright	Copyright © The Author(s), 2014. Published by Science Publishing Group

Keywords

Parkinson’s Disease, Close Relatives, Anticipatory Grief, Psychology

References

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APA Style

Ulf Erland Johansson, Agneta Grimby. (2014). Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease. Psychology and Behavioral Sciences, 3(5), 179-184. https://doi.org/10.11648/j.pbs.20140305.15

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ACS Style

Ulf Erland Johansson; Agneta Grimby. Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease. Psychol. Behav. Sci. 2014, 3(5), 179-184. doi: 10.11648/j.pbs.20140305.15

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AMA Style

Ulf Erland Johansson, Agneta Grimby. Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease. Psychol Behav Sci. 2014;3(5):179-184. doi: 10.11648/j.pbs.20140305.15

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@article{10.11648/j.pbs.20140305.15,
  author = {Ulf Erland Johansson and Agneta Grimby},
  title = {Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease},
  journal = {Psychology and Behavioral Sciences},
  volume = {3},
  number = {5},
  pages = {179-184},
  doi = {10.11648/j.pbs.20140305.15},
  url = {https://doi.org/10.11648/j.pbs.20140305.15},
  eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.pbs.20140305.15},
  abstract = {Several illnesses cause suffering and pre-death grief among close relatives, as in cancer and dementia. This might be the case also at Parkinson’s Disease (PD). We aimed at getting grief self-reports of relatives of PD patients using the same instrument (AGS) as in former grief studies to see similarities and differences. Anticipatory Grief Scale (AGS) and questions about background variables were sent to PD caregiver support groups in Sweden to be handed out to the members at their meetings. Close relatives of persons with Parkinson’s disease (PD) reported feelings and reactions on the AGS, and the results were compared with those from relatives of dementia patients in a former study also using the AGS. Self-estimations about the duration of illness, the condition at the time for questioning, and the perceived quality of care of the relative with PD were also made. The study showed an overall stressful situation including feelings of missing and longing, inability to accept the terminal fact, preoccupation with the ill, tearfulness, sleeping problems, anger, loneliness, and a need to talk. The PD and dementia groups appeared to show much more anticipatory grief similarities than dissimilarities. The duration of the disease did not influence the grief reactions, which, however, was shown for perceived quality of care as regards irritability and preoccupation thinking of the ill relative. Also the respondents’ perception of a bad condition of their relatives showed increased reports on loneliness, a need to talk about the illness, personal dysfunction, and not planning ahead.},
 year = {2014}
}

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TY  - JOUR
T1  - Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease
AU  - Ulf Erland Johansson
AU  - Agneta Grimby
Y1  - 2014/11/10
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DO  - 10.11648/j.pbs.20140305.15
T2  - Psychology and Behavioral Sciences
JF  - Psychology and Behavioral Sciences
JO  - Psychology and Behavioral Sciences
SP  - 179
EP  - 184
PB  - Science Publishing Group
SN  - 2328-7845
UR  - https://doi.org/10.11648/j.pbs.20140305.15
AB  - Several illnesses cause suffering and pre-death grief among close relatives, as in cancer and dementia. This might be the case also at Parkinson’s Disease (PD). We aimed at getting grief self-reports of relatives of PD patients using the same instrument (AGS) as in former grief studies to see similarities and differences. Anticipatory Grief Scale (AGS) and questions about background variables were sent to PD caregiver support groups in Sweden to be handed out to the members at their meetings. Close relatives of persons with Parkinson’s disease (PD) reported feelings and reactions on the AGS, and the results were compared with those from relatives of dementia patients in a former study also using the AGS. Self-estimations about the duration of illness, the condition at the time for questioning, and the perceived quality of care of the relative with PD were also made. The study showed an overall stressful situation including feelings of missing and longing, inability to accept the terminal fact, preoccupation with the ill, tearfulness, sleeping problems, anger, loneliness, and a need to talk. The PD and dementia groups appeared to show much more anticipatory grief similarities than dissimilarities. The duration of the disease did not influence the grief reactions, which, however, was shown for perceived quality of care as regards irritability and preoccupation thinking of the ill relative. Also the respondents’ perception of a bad condition of their relatives showed increased reports on loneliness, a need to talk about the illness, personal dysfunction, and not planning ahead.
VL  - 3
IS  - 5
ER  -

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Author Information

Ulf Erland Johansson

Department of Medicine, Sahlgrenska Academy, Gothenburg University, Gothenburg, Sweden
Agneta Grimby

Department of Geriatrics, Sahlgrenska Hospital, Gothenburg, Gothenburg, Sweden

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APA Style

Ulf Erland Johansson, Agneta Grimby. (2014). Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease. Psychology and Behavioral Sciences, 3(5), 179-184. https://doi.org/10.11648/j.pbs.20140305.15

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ACS Style

Ulf Erland Johansson; Agneta Grimby. Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease. Psychol. Behav. Sci. 2014, 3(5), 179-184. doi: 10.11648/j.pbs.20140305.15

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AMA Style

Ulf Erland Johansson, Agneta Grimby. Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease. Psychol Behav Sci. 2014;3(5):179-184. doi: 10.11648/j.pbs.20140305.15

Copy | Download

@article{10.11648/j.pbs.20140305.15,
  author = {Ulf Erland Johansson and Agneta Grimby},
  title = {Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease},
  journal = {Psychology and Behavioral Sciences},
  volume = {3},
  number = {5},
  pages = {179-184},
  doi = {10.11648/j.pbs.20140305.15},
  url = {https://doi.org/10.11648/j.pbs.20140305.15},
  eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.pbs.20140305.15},
  abstract = {Several illnesses cause suffering and pre-death grief among close relatives, as in cancer and dementia. This might be the case also at Parkinson’s Disease (PD). We aimed at getting grief self-reports of relatives of PD patients using the same instrument (AGS) as in former grief studies to see similarities and differences. Anticipatory Grief Scale (AGS) and questions about background variables were sent to PD caregiver support groups in Sweden to be handed out to the members at their meetings. Close relatives of persons with Parkinson’s disease (PD) reported feelings and reactions on the AGS, and the results were compared with those from relatives of dementia patients in a former study also using the AGS. Self-estimations about the duration of illness, the condition at the time for questioning, and the perceived quality of care of the relative with PD were also made. The study showed an overall stressful situation including feelings of missing and longing, inability to accept the terminal fact, preoccupation with the ill, tearfulness, sleeping problems, anger, loneliness, and a need to talk. The PD and dementia groups appeared to show much more anticipatory grief similarities than dissimilarities. The duration of the disease did not influence the grief reactions, which, however, was shown for perceived quality of care as regards irritability and preoccupation thinking of the ill relative. Also the respondents’ perception of a bad condition of their relatives showed increased reports on loneliness, a need to talk about the illness, personal dysfunction, and not planning ahead.},
 year = {2014}
}

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TY  - JOUR
T1  - Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease
AU  - Ulf Erland Johansson
AU  - Agneta Grimby
Y1  - 2014/11/10
PY  - 2014
N1  - https://doi.org/10.11648/j.pbs.20140305.15
DO  - 10.11648/j.pbs.20140305.15
T2  - Psychology and Behavioral Sciences
JF  - Psychology and Behavioral Sciences
JO  - Psychology and Behavioral Sciences
SP  - 179
EP  - 184
PB  - Science Publishing Group
SN  - 2328-7845
UR  - https://doi.org/10.11648/j.pbs.20140305.15
AB  - Several illnesses cause suffering and pre-death grief among close relatives, as in cancer and dementia. This might be the case also at Parkinson’s Disease (PD). We aimed at getting grief self-reports of relatives of PD patients using the same instrument (AGS) as in former grief studies to see similarities and differences. Anticipatory Grief Scale (AGS) and questions about background variables were sent to PD caregiver support groups in Sweden to be handed out to the members at their meetings. Close relatives of persons with Parkinson’s disease (PD) reported feelings and reactions on the AGS, and the results were compared with those from relatives of dementia patients in a former study also using the AGS. Self-estimations about the duration of illness, the condition at the time for questioning, and the perceived quality of care of the relative with PD were also made. The study showed an overall stressful situation including feelings of missing and longing, inability to accept the terminal fact, preoccupation with the ill, tearfulness, sleeping problems, anger, loneliness, and a need to talk. The PD and dementia groups appeared to show much more anticipatory grief similarities than dissimilarities. The duration of the disease did not influence the grief reactions, which, however, was shown for perceived quality of care as regards irritability and preoccupation thinking of the ill relative. Also the respondents’ perception of a bad condition of their relatives showed increased reports on loneliness, a need to talk about the illness, personal dysfunction, and not planning ahead.
VL  - 3
IS  - 5
ER  -

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